Benefit To Be Held For Teenage Girl With Rare Condition

One day she was a happy, healthy 13 year old, the next she was unable to walk, the victim of a rare spinal condition.

Now her Lexington community is rallying around her.

Transverse Myelitis was the diagnosis that shocked and confused Amber Rayburn's family back in August.

Her grandmother, Betty Fowler, says Amber was at home watching TV when she stood up off the couch and had sharp pains in both her legs.
By midnight, she was completely numb from the waist down.

Doctors at UK Children's Hospital diagnosed her condition within 48 hours, and before long, she was doing therapy at Cardinal Hill Hospital.

But now, her hopes of walking again may rest with a specialist in Baltimore.

Dr. Douglas Kerr is the nation's authority on Transverse Myelitis, especially in children.

Fowler says Amber will probably have numerous trips to Baltimore for treatment, which will require much more money than the family's limited insurance can provide.

Now, Amber's community is coming together to help her and her family.

This Friday night, a benefit called the Harvest of Hope will be a night of food, live music and a silent auction, with all proceeds going toward Amber's treatment.

The benefit will be held at the Ramada Inn Conference Center.

Among the many silent auction items going up for bid at Friday night's benefit is a football signed by UK Coach Rich Brooks.

Fund raising efforts are also under way at Jessie Clark Middle School where Amber is very much on the minds of students and teachers.


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  • by holly Location: inwood,ia on Dec 20, 2009 at 06:14 PM
    Hi Amber,I believe your grandfather was working on the RR by our home this summer and told us what happened.We have 4 girls of our own and are telling others of your condition and praying for you. May God be your strength and your guide. Holly
  • by amber rayburn Location: lexington kentucky on May 30, 2008 at 08:15 AM
    hi im amber, thank you so much everyone for everything that youve done for me, im now 14yrs old an graduating the 8th grade. i am so thankful for everything that all you all have done for me! please pray for me.. lots of love from amber... may 30, 2008!
  • by KAYLA ROGERS Location: KENTUCKY on Feb 1, 2008 at 12:21 PM
    SIS, I LOVE YOU SO MUCH AND THANK YOU FOR NOT GIVING UP YOU ARE DOING SO MUCH BETTER NOW AND PEOPLE LOVE YOU FOR THAT THANKS TO ALL THE PEOPLE WHO HAVE SENT AMBER COMMENTS SHE REALLY APPRITIATES THEM.
  • by nicholas Location: whitler on Jan 28, 2008 at 04:14 PM
    amber my mom is one of the people that helped you at cardinal hill her name was sheila whitler and she hopes the best for you.
  • by kayla Location: kentucky on Jan 8, 2008 at 02:30 PM
    AMBER I LOVE YOU AND DONT LOOSE FAITH GURL GOD IS STILL LOOKING OUT FOR YOU I LOVE YOU AS YOUR BEST FRIEND AND YOUR SISTER
  • by michaela and olivia Location: lexington, kentucky on Nov 6, 2007 at 05:39 PM
    amber, we miss you and hope the best for you.We wish we could be back in chicago with you missing the bus at chinatown.lol.We want to come and visit you soon!!!:)
  • by Kathy Location: Ohio on Oct 31, 2007 at 05:45 PM
    My brother, James, was diagnosed with TM April 2006. 39 years old. Went to bed and woke up paralyzed from the waist down. No improvement. Lives in Stanton, KY. Best wishes with Dr. Kerr. He's very helpful.
  • by Heather Location: Calgary Alberta Canada on Oct 19, 2007 at 02:33 PM
    Amber, Wishing you all the best in your recovery. I am 62 yrs old, have had it 4 yrs. Dr. Kerr is very special to all of us with TM
  • by me Location: ky on Oct 17, 2007 at 04:09 PM
    i am so sorry for this family god blessypu all so much i hope it all goes well
  • by peggy Location: Ky on Oct 17, 2007 at 03:24 PM
    I hope you the very best,Amber!I can't imagine what a horrible shock you must be going through.I hope Dr.Kerr can help you start walking again.Good Luck.

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