An Angel With A Deadly Disease

By: Denny Trease Email
By: Denny Trease Email

Imagine learning that a loved one is afflicted with a disease you've never hear of, but one that will gradually take that loved one from you.

That story is being played out daily in Estill County.

Ken Moore is retired from the military and now spends most of his time seeing to the needs of his wife, who suffers from Huntington's Disease.

Mr. Moore tells 27 NEWSFIRST, "Huntington's is a hereditary genetic disorder. The only way you can get it is to inherit it, a brain disorder. Three weeks ago actually, the FDA approved the first drug ever to treat the chorea part of Huntington's. Chorea is the involuntary movements and the audibles. It's terminal. Right now, there is no cure."

Angel Lucas married Ken Moore almost 8 years ago. Now, whenever he asks her how she's feeling or if she needs anything, her answer is always the same.

Ken Lucas says, "It's always 'I'm fine.' I think Miss Angel could be sitting out in the sun in 110 degree heat and nothing to drink all day, but ask her if she needs anything, and she'll say she's fine. You'd think that somebody who has this and knows what lies ahead would be always depressed and moody. Miss Angel is always worried about everybody else and how they're feeling."

Two years ago, Ken started a support group in Winchester for those with Huntington's and their care givers and works tirelessly to increase awareness of their special needs.

He says, "Miss Angel's intake is 8,000 calories a day to maintain her weight. Consequently, our food bill is the equivalent of a family of five. We pay everything out of our pocket which really straps you sometimes."

Ken says Angel looks at everything with childlike wonder and inspires others to appreciate the beauty around them.

"She can walk and see a flower, hummingbirds, any animal. Everything is fascinating to her. She just really opens your eyes up to a lot of things around you," Ken said.

Angel's mother and grandmother both died of Huntington's, and she has a brother and a sister confined to nursing homes with it, so she considers herself lucky to have a dedicated care giver like Ken.

She says, "He does everything for me. He does all the cleaning, the mopping. He does everything outside and inside."

But Ken isn't ready to give up any of his burden. He says with a tear in his eye, "I just can't imagine life without her right now."

And regardless of what the future brings, Ken Moore feels blessed to have had an angel by his side.

Huntington's disease is most often diagnosed between the ages of 30 and 50.

To learn more, call the toll free Huntington's hot line at 1-800-784-3721


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Comments are posted from viewers like you and do not always reflect the views of this station.
  • by hattie Location: winchester on Mar 28, 2009 at 08:45 PM
    ken is very determined to inform anyone who will listen about huntingtons disease,and speacks with passion and comittment,you can easily see he loves his wife.
  • by cathy Location: louisville on Mar 13, 2009 at 07:58 AM
    Ken has helped me and my family,thank you so much we love you.
  • by Sandy Location: georgetown on Mar 12, 2009 at 06:38 AM
    I wa sent this artiicle ,along with some wriiten one ,Its about time some speaks out about this disease.years ago an aunt by marriage was diagnosed with huntingtons yet know one knew what it was if you couls catch it from them ,they felt alone like know one cared,she spent most of her years at home out of the public eye because mostly she was embarresed by the disease and most people would stare at her because of the movements ,I was young but remember the pain she went thru , and her trying to talk and tears running down her cheeks because she couldn,t say i love you where you could make it out, my uncle was always telling us what she said.But she was rarely visited by anyone outside the family which made my uncle and aunt seem hopeless and alone,only because people didn,t know enough about this disease and still don,t.God bless you both
  • by Paul and Cathy Location: corbin on Mar 10, 2009 at 05:23 PM
    Freinds have sent written articles and told me of this broadcast.I want to thank ken for careing,the 800 number helped to open doors i didn,t know were even there.
  • by Bob Location: winchester on Mar 9, 2009 at 08:25 AM
    I never knew about huntingtons disease untill i met ken who gave a talk on it to the civatan club of winchester,i was not the only one who knew nothing about this disease,i along with others feel more needs to said.
  • by mary Location: richmond on Mar 8, 2009 at 07:29 PM
    I have met ken and angel he was giving out pamplet about huntingtons disease.he shows a true committment to his wife as well as educating others about the disease.you can see the love and can not help but be touched .
  • by Kendra Moore Location: clarksville TN on Feb 28, 2009 at 11:12 AM
    this is my dad and mom and they are the best in the world I love you both
  • by Pam Location: Irvine on Sep 17, 2008 at 12:00 PM
    I've met Angel and Ken, Ken has written several articles that I've published in my paper (www.allthingscountryky.com) about Huntington's. What an inspiration they are!
  • by Nathan Location: Morehead on Sep 11, 2008 at 08:39 AM
    My father suffers's from HD. He's in the last stages in a nursing home. The diesease is terrible to watch from the outside, and worse while living within the throws of it. It destroyed my family. More people need to be aware of it, and public policy needs to reflect the need for better care for HD patients. My father would act strange and back when he could dive, He would sometimes drive erratically. When he tried to explain his condition, the officers ignored him or taunted him. They had never heard of it. Most doctors only get a quick lesson on it in Med School. Only the specialized field of neurology really has a grip on what it is.
  • by Ginny Location: Lexington on Sep 10, 2008 at 07:03 PM
    I have met this couple, he is sincerely dedicated to his wife. This man meant what he said when he took his wedding vows "in sickness and in health" They should be an inspiration to all of us. Bless the both of them.

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