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Morgan Co. family: medical marijuana helping son fight form of epilepsy


LEXINGTON, Ky. (WKYT) - A bright smile, but a boy of very few words that was Charlie Byrd in August when our cameras first introduced you to his rare form of epilepsy, called "Dravet Syndrome."

"He keeps smiling and he doesn't even know that he's sick," said his mother, Crystal, in August.

"We've tried numerous therapies, medicines, and nothing has ever worked," added his father, Eric.

In the end, the Byrd family finally sought out one last option, but it meant a move to Colorado.

"We've been out here about three weeks now," said Crystal via FaceTime, "We're lonesome, but we're liking what we're seeing."

Now near Colorado Springs, the family is able to get their five-year-old son medicinal marijuana in an oil form.

"It's almost like a different child everyday he just gets a little more clearer and he's more engaged. It seems like he's waking up from some kind of slumber," described Crystal.

He's even singing, as seen in a video they posted to a Facebook page for Charlie.

"He tries. A little George Jones is who that is," chuckled his mom.

The Byrds get the cannabidiol from a dispensary and use a syringe to put it under Charlie's tongue. The results, they say, are indisputable and it's still early in the process. They're hopeful that this early progress will develop into more as he continues to use the oil.

"He's not getting high, if anything he's getting more clear," explained Crystal, who said this marijuana has no THC, which gives a high in the drug form.

However, the Byrds aren't the only family to make the migration to Colorado seeking some miracle.

"We've met so many families doing the exact same thing that we are, and all seeing positive results," she said.

To see their child so clear is a blessing, but it comes at a cost. The family left their loved ones and home behind in the Bluegrass State and everyone misses Kentucky, Charlie included.

"He's missing home, he's asked several times to go to the blue school which is his home school," said Crystal, "He wants to come back and we want to bring him back because there were people that loved him and care for him."

Unless something changes in Kentucky, that may not happen until this form of medicine is allowed. Until then, the Byrds say they'll stay as long as they can just to keep their son healthy and happy.

The family did receive a call from House Speaker Greg Stumbo's office checking on their status in Colorado. A call the family takes as an optimistic sign.


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